Oculofacial Pain Syndrome

An Overlooked, Invisible and Devastating Neuropathic Eye Pain Background Pain is our biologic alarm system of impending or actual tissue damage and is essential for our survival. On the other hand, symptoms caused by disorders of the pain system itself is the disease known as neuropathic pain. Although commonly known to be triggered by peripheral […]


Is Devastating Eye Pain Real When It’s Invisible?

“I pray each night to be able to fall asleep and never wake up”, ‘Jane’ whispered after describing the burning, sharp, cutting and needle-like piercing pain that had found a home in her eyes during the past 4 years. The constant headaches that travel to her ears, face and occasionally to her jaws were almost […]


Not Seeing Is Not Believing

Hannah Lee’s Story

It started a little over two years ago when I was 26 years old – slight burning in both eyes that rapidly became more intense and was soon joined by crippling, stabbing pain that shocked me to my very core. The agony was so unbearable that there were times I wanted to gouge my eyes out. Since then I’ve seen over a dozen ophthalmologists, several primary care doctors and have been to emergency clinics. While some doctors were simply puzzled, others were abrupt and implied that since they could see no physical signs for the pain I described, it couldn’t be real.


A Last Cry For Help

The following is an excerpt of an email sent to me from a patient.

The eye pain is by far the worst aspect of my health issues… And also the one thing that all doctors have ignored or dismissed. The pain is constant and rarely mild. It’s most often a deep, extreme ache in both eyes but can also be a burning sensation or a feeling that I have fiberglass in my eyes. It causes me anxiety attacks, stress, depression. It’s so bad that I can’t work. I cannot look at computer monitors or TV screens. I cannot care for my children.